Perceptions of Respite Care Findings from Focus Groups

This report presents findings from a study exploring the perceptions of respite care among caregivers, based on insights gathered from nine virtual focus groups. The study aims to understand why many caregivers do not utilize respite care despite acknowledging its potential benefits. It identifies that a significant number of caregivers are unfamiliar with the term 'respite care' and often associate it with emergencies rather than a proactive means of self-care. Cultural norms and expectations are highlighted as barriers to the use of respite care, particularly among Black, Hispanic, and Asian families. Additionally, the report discusses the emotional challenges caregivers face, including feelings of guilt and the perception that seeking help equates to failure. The findings suggest that while informal respite care is more familiar and trusted among caregivers, there are concerns regarding the quality of care and the potential strain on personal relationships. The report concludes with recommendations for increasing the appeal and utilization of respite care services.