Data Tokenization and Real-World Patient Insights Study

This report provides an overview of a study conducted by Parexel International that focuses on data tokenization and its application in linking real-world data (RWD) with patient insights. The study aimed to address gaps in traditional clinical research, particularly in capturing diverse patient characteristics such as race, ethnicity, and social determinants of health (SDOH). The methodology involved reaching out directly to patients with chronic heart disease, obtaining informed consent, and administering a questionnaire that included inquiries about their healthcare experiences. The findings suggest that 95% of participants consented to tokenization, and significant matching of tokens was achieved across multiple datasets. The document also details the collaborative efforts with various partners, highlights the successful integration of technology, and emphasizes the importance of incorporating diverse patient data to create a more comprehensive understanding of health outcomes. Insights on patient demographics, including socioeconomic factors, were also gathered to enhance the representation in clinical research.