Linking Real-World Data and Patient Insights

This technical report outlines a study protocol initiated by Parexel to evaluate technologies for linking real-world data (RWD) with patient insights in clinical research. The objective of the study was to address the shortcomings in understanding patients' personal characteristics and treatment experiences. The report details the innovative data science techniques employed, including tokenization, which allows for secure matching of sensitive patient information with RWD sources. The findings indicate that this approach can provide a more comprehensive view of patient journeys, particularly for those with chronic heart disease. Additionally, the report discusses the insights gained from patient feedback, including concerns about treatment safety and efficacy, and highlights the potential applications of this methodology in clinical trials and long-term follow-up studies. The study demonstrates the viability of direct patient engagement and the importance of incorporating diverse patient perspectives into clinical research.