Decentralized Clinical Trials Patient Engagement Strategies

This white paper from Rare Patient Voice, a Konovo Company, presents findings from a survey of 1,000 U.S. patients and caregivers regarding their experiences and preferences related to clinical trial participation. The objective of the paper is to provide insights into the barriers patients face when considering enrollment in clinical trials, particularly emphasizing logistical challenges such as distance and travel. The survey reveals that 94% of respondents would be more inclined to enroll in trials that offer telemedicine visits and local lab options, highlighting a significant opportunity for trial sponsors to adapt their designs. The paper outlines strategic recommendations for sponsors and contract research organizations (CROs) to enhance patient engagement by integrating decentralized trial features, improving communication, and offering flexible participation options. It emphasizes the importance of understanding patient needs to create more accessible and appealing clinical trial experiences.