Patient Perspectives on Living with IPF

This report presents qualitative insights gathered from interviews with patients and caregivers affected by idiopathic pulmonary fibrosis (IPF). The objective of the research was to incorporate the experiences and voices of those living with IPF into the design of clinical trials and research strategies. The interviews revealed common symptoms impacting daily life, including fatigue, breathlessness, and anxiety related to activity limitations. Patients discussed the significant changes in their daily routines and hobbies, often relying heavily on caregivers for support. The report also covers patients' experiences with anti-fibrotic medications, highlighting varied sentiments towards side effects. Perspectives on ideal treatments were shared, emphasizing the importance of early intervention and minimal side effects. Additionally, the report addresses the challenges faced during clinical trials, including travel burdens and the complexity of assessments. Overall, the findings underscore the need for improved communication and support for patients navigating their diagnosis and treatment options.